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Forum to assist all patients to obtain NHS care 'free at the point of need' which has been the statutory right of every resident British citizen since the 1946 National Health Service Act became law.

    hospice continuing care bed issue

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    tonybee

    hospice continuing care bed issue

    Post by tonybee on Sat 23 Apr 2011 - 1:57

    Mum was admitted to a continuing care bed in a hospice a month ago. She received fast track continuing care funding. She has stage 4 lung cancer and at that time had a chest infection which has now cleared. Although she had been told she only had weeks to months to live back in November she is still with us but clearly deteriorating. When she was admitted she was told she could stay in that bed to the end but now they want to move her to a care home and a funding review will also take place next week.

    It is only the high quality of care in the hospice that has improved her quality of life and health.Removal from the hospice will certainly cause a reversal in her condition.

    1. Can we use the grounds of it being detrimental to her health that she be moved especially since she is devastated by the news, won't talk about it and wants to die in the hospice. She has even said to me she hopes to die early rather than go to a care home instead.

    2. If the review removes funding can she remain at the hospice whilst we appeal?

    I know "end of life" is considered to be 6 weeks and Mum may have longer but surely a continuing care bed means just that?

    Help would be much appreciated.

    Thanks
    Bee

    Guest
    Guest

    Re: hospice continuing care bed issue

    Post by Guest on Sat 23 Apr 2011 - 4:03

    Hi Bee

    This NHS link may help you more - and it certainly says there that:

    End of life care may last a few days, or for months or years. End of life care begins when you need it, and will continue for as long as you need it.


    http://www.nhs.uk/Planners/end-of-life-care/Pages/what-is-end-of-life-care.aspx

    There are quite a few sections for you to read.

    Hope you get what you want for your Mum.

    VM pig

    bodecia2007

    Re: hospice continuing care bed issue

    Post by bodecia2007 on Sat 23 Apr 2011 - 6:23

    Tony a care home is no place for a very ill person - there is just a limited amount of medically qualified staff [ 1 registered Nurse at my Mums care home !! ] as it is a privately ran business and they simply cannot care for such a high health needs person such as your Mother - she is much safer in a Hospice. And I'm disgusted to learn that these so called caring people are even suggesting such a move as they clearly do not have her best interests in mind to even contemplate wrenching her from familiar surroundings to a ' care home'. And a good manager of a care home will see this error of judgement for themselves should ,and if ,they come to assess her high Healcare needs !!

    tonybee

    Many thanks for the comfort of your support

    Post by tonybee on Sat 23 Apr 2011 - 15:10

    Your replies have given us comfort and strengthened our resolve to assist Bee's Mum
    to end her days in the best envirionment available.

    The road ahead will be less difficult with the support of this forum, many many thanks.

    Tony

    bodecia2007

    Re: hospice continuing care bed issue

    Post by bodecia2007 on Sat 23 Apr 2011 - 15:33

    I wish you and your family all the best Tony God Bless xx

    Guest
    Guest

    Re: hospice continuing care bed issue

    Post by Guest on Thu 5 May 2011 - 2:12

    Hi Tonybee, I do agree with Bodecia2007 that a care home just have limited care option and if your mother need specialized medical care in lung cancer then you should not move your mother from Hospice care as this would certainly pout down your mother health because care home is a place for that kinds of elder who requires personal care and emotional support.

    tonybee

    Re: hospice continuing care bed issue

    Post by tonybee on Fri 13 May 2011 - 5:10

    Against all expectations Mum has 'stablised' - that doesn't mean recovered of course but the situation now is that when the PCT call the hospice this week or next the hospice will say that they believe she does not need continuing care. It is true that she is much improved but still needs nursing care every day.We wil of course fight any attempt to withdraw funding
    Poor dear thought that she had just weeks to live and the hospice was a great place to die but it now seems she may live on for months. She has all her marbles, she has all her marbles and doesn't like being in an open ward with a regular turnover of people in th other beds as they pass on.
    What she would like is to return home but that would not be an option if she did not have nursing care. Dad is 83 and not carer material!
    Does anyone have any experience of asking for PCT funded nursing care at home, the extent of that care and the cost if funding is withdrawn?
    We just want her to die where she is most comfortable and an open ward in a hospice however nice the souroundings is not really a longer term ideal.

      Current date/time is Sat 1 Nov 2014 - 7:01